Ean Moody
Broad Institute
1 active project
Ean Test Workspace
Scientific Questions Being Studied
If you are exploring the data at this stage to formalize a specific research question, please describe the reason for exploring the data, and the scientific question you hope to be able to answer using the data. Your responses should cover the major components of a research summary: hypothesis, methods, and anticipated findings. Therefore, please provide sufficiently detailed responses in plain language (without jargon), using as few technical terms as possible.
Project Purpose(s)
- Educational
Scientific Approaches
Any research that focuses on certain population characteristics or uses demographic variables in analyses can result, often unintentionally, in findings that may be misinterpreted or misused by others to foster stigma. While it may not be possible to completely prevent misuse of research for stigmatizing purposes, data users can take important steps to minimize the risk of this happening–taking this step is a condition of yourData User Code of Conduct agreement. If you are concerned that your research could inadvertently stigmatize participants or communities, or if you are unsure, let us know. We encourage you to request a review of your research purpose statement by the All of Us Resource Access Board (RAB) as a precaution.
Anticipated Findings
A primary aim of All of Us is to engage communities that have been historically underrepresented in biomedical research. The next set of questions is designed to help us assess how well we are serving underrepresented communities—and to protect against potentially stigmatizing research findings, to which these groups are more vulnerable. All of Us supports well-designed and responsible research that addresses questions relevant to underrepresented communities, as well as research that compares different groups and populations. At the same time, we recognize that research with underrepresented populations can unintentionally result in harm, including the exacerbation of stigma. We encourage researchers to consider whether their research design, methods, and analyses could potentially cause harm to individuals, groups, and communities.
Demographic Categories of Interest
- Access to Care
Data Set Used
Registered Tier
Request a Review of this Research Project
You can request that the All of Us Resource Access Board (RAB) review a research purpose description if you have concerns that this research project may stigmatize All of Us participants or violate the Data User Code of Conduct in some other way. To request a review, you must fill in a form, which you can access by selecting ‘request a review’ below.
